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What Are We Doing Here & Why Track Individual Swine Flu Cases?

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  • What Are We Doing Here & Why Track Individual Swine Flu Cases?

    This project has been quite a ride.

    I never would have guessed we would be invited (3/08) as experts in mass communication to give advice to the U.S. Secretary of Health and Human Services.

    I never would have guessed that we would be viewed in over 145 countries per month.

    I never would have guessed that so many great individuals would join and donate thousands of hours of time to help strangers that they would never meet.

    We can ask and get interviews with experts from all over the world. We are quoted in major news media as a source. Last week we were one of a very few online media invited to participate in a question and answer session with representatives from the the Dept. of Homeland Security, the White House, and the CDC.

    How did this happen? Every time someone says yes to an interview I am still taken aback. Us. Not a medical site. Not an institution. Not a political or religious affiliation. No previous media experience. So why......?

    It is our spirit. They have seen what is in our hearts and they have come.

    It is in this spirit that we continue to track individual cases. We know these numbers represent only a fraction of the actual cases but they are a window into what is happening.

    Our only real hope of finding out what this virus is doing around the world.

    Detailed information about clinical presentation, treatments, patient contacts, underlying conditions, etc. are almost never reported in news reports. The tracking here is not confined to strict definitions of “an infected case”. We track all kinds of infectious diseases, often based only on suspected cases. Sometimes we find that some infectious diseases are misidentified or diagnosed incorrectly. Sometimes we find critical information in non-English language sources.

    Through the diligence and perseverance of FluTrackers members and other posters in flublogia we find trends that may not yet be recognizable to public health officials that are struggling to interpret their local or regional data.

    For some flutrackers, there is another reason to track cases, a reason that relates to personal satisfaction and actualization. As the current pandemic gains momentum, it is easy for a feeling of helplessness to sweep over an individual. We are seeing a wide range of estimates for the case fatality rate - some of them approaching, or even exceeding, the level of the 1918 pandemic. We are also seeing dire warnings for a more virulent second wave in a few months. Despite news reports to the contrary, we are starting to see a potential trend - healthy young people becoming severely ill and dying from H1N1.

    Learning more about a pandemic, making physical and mental preparations, and tracking influenza cases can be personally empowering in light of these pandemic conditions. Being able to track cases and contribute to FluTrackers allows some of us to feel like we are “making a difference”.

    It also allows us to feel that we have not yet relinquished control of our own future to this pandemic outbreak.

    Thank you to everyone who has helped us on this project to assist our fellow man.


    "Human salvation lies in the hands of the creatively maladjusted."

    Martin Luther King, Jr.


  • #2
    Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

    why then don't those people (some of them) from HHS,CDC
    post here occasionally ? Answer some questions, give ideas.

    I find it strange, that they are interested in our opinions but
    don't say something.

    Maybe they are just afraid we might ask for
    probability estimates and damage expectation values...



    and we don't need a subforum or thread for each country and in several languages, IMO.
    Their updates bump the latest posts one or two pages back and you won't find
    replies to your threads
    I'm interested in expert panflu damage estimates
    my current links: http://bit.ly/hFI7H ILI-charts: http://bit.ly/CcRgT

    Comment


    • #3
      Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

      I think is says a lot that FT is recognized and invited. It shows we are not "just some blog" on the vast net. It took a big joint effort on everyone's part to get where we are.

      I agree with gs; it would be a good thing if those who are members would step up and comment occasionally instead of always lurking. Not just individuals, but businesses and govt/non-govt organizations.

      As for this:
      and we don't need a subforum or thread for each country and in several languages, IMO.
      Hmmmm... maybe we could have just a couple of looooonnnnnnngggggg threads where stuff is buried 150 pages back?

      Seriously, this is a big forum that serves a lot of countries; I don't have any good answers as to how we could make it simpler or quicker to use.
      The salvage of human life ought to be placed above barter and exchange ~ Louis Harris, 1918

      Comment


      • #4
        Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

        Originally posted by gsgs View Post

        and we don't need a subforum or thread for each country and in several languages, IMO.
        Their updates bump the latest posts one or two pages back and you won't find
        replies to your threads
        I know it's a little nuisance, but it's not done often. Last time was months ago. It does help people who speak some of these languages in these countries, and it helps them find us with Google because I've added tags. A little like "site optimizing".

        Comment


        • #5
          Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

          Last week we were one of a very few online media invited to participate in a question and answer session with representatives from the the Dept. of Homeland Security, the White House, and the CDC.
          I must have missed the thread(s) on this? Can you please direct me to your posts on these sessions?

          Comment


          • #6
            Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

            Originally posted by gsgs View Post
            .............we don't need a subforum or thread for each country ..........Their updates bump the latest posts one or two pages back and you won't find replies to your threads
            Putting most news (especially simple case count updates) into one thread keeps related information together and insures that we don't have so many pages of threads, that subjects get bured on page 23.

            To find the answers to your questions, do an advanced search using your name and specify the date range as after yesterday (or longer if you haven't been on the site for more than a day - have you ever done that gs?)

            .
            "The next major advancement in the health of American people will be determined by what the individual is willing to do for himself"-- John Knowles, Former President of the Rockefeller Foundation

            Comment


            • #7
              Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

              Originally posted by Florida1 View Post

              Despite news reports to the contrary, we are starting to see a potential trend - healthy young people becoming severely ill and dying from H1N1.

              Yes, may be we should have a thread on this, putting relevant information of these cases together, like here:

              Comment


              • #8
                Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

                Would it be possible to have a feature that would enable us to set language preferences? That way, members could only see the new posts in whatever language they chose.
                The salvage of human life ought to be placed above barter and exchange ~ Louis Harris, 1918

                Comment


                • #9
                  Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

                  Dutchy, I think that is an excellent idea. A thread specifically for cases with no underlying conditions.

                  Comment


                  • #10
                    Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

                    Originally posted by Commonground View Post
                    I must have missed the thread(s) on this? Can you please direct me to your posts on these sessions?
                    Here is the thread:




                    I have been waiting for a transcript to be published so I can post it.

                    Comment


                    • #11
                      Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

                      This is the only transcript I could find but it is a partial:





                      I asked these questions:

                      Question: ...Our basic question is, how can the Internet help President Obama and help the CDC and help the Department of Homeland Security in this preparedness effort? We've heard a lot of details about the illness and there's a lot more facts we'd like to ascertain of course, but the real basic question is, how can we serve the country better?

                      Question: ...One of the biggest issues that's come across this spring with our, our, I guess first few weeks of this outbreak has been that this virus apparently is age selecting for younger ages versus senior citizens, more or less. Do, do we have any details on some of the healthy children that have, have died of this? Are, are there follow ups being, going on and, you know, if there are, what do we expect, some of those facts? And, also as far as the Native American community goes, there was a speaker that was on quite a bit today, very, very interesting, what is the U.S. government doing to help, you know, our, our Native Americans? And to a larger extent, since the CDC and HHS have really been world leaders in pandemic preparedness, there was also a comment today about what we are doing and what we're going to be helping other countries with and would, could anyone comment on that?

                      Comment


                      • #12
                        Re: What Are We Doing Here & Why Track Individual Swine Flu Cases?

                        Some trolling posts and the responses were moved into archive.

                        Thanks everyone for participating!

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