tetano
Editor, Senior Moderator
Front Public Health
. 2025 Mar 12:13:1513508.
doi: 10.3389/fpubh.2025.1513508. eCollection 2025. Development of the ECHOES national dataset: a resource for monitoring post-acute and long-term COVID-19 health outcomes in England
Hester Allen[SUP] 1 2 [/SUP], Katie Hassell[SUP] 1 [/SUP], Christopher Rawlinson[SUP] 1 [/SUP], Owen Pullen[SUP] 1 [/SUP], Colin Campbell[SUP] 1 [/SUP], Annika M Jödicke[SUP] 2 [/SUP], Martí Català[SUP] 2 [/SUP], Albert Prats-Uribe[SUP] 2 [/SUP], Gavin Dabrera[SUP] 1 [/SUP], Daniel Prieto-Alhambra[SUP] 2 3 [/SUP], Ines Campos-Matos[SUP] 1 [/SUP]
Affiliations
Introduction: Electronic health records can be used to understand the diverse presentation of post-acute and long-term health outcomes following COVID-19 infection. In England, the UK Health Security Agency, in collaboration with the University of Oxford, has created the Evaluation of post-acute COVID-19 Health Outcomes (ECHOES) dataset to monitor how an initial SARS-CoV-2 infection episode is associated with changes in the risk of health outcomes that are recorded in routinely collected health data.
Methods: The ECHOES dataset is a national-level dataset combining national-level surveillance, administrative, and healthcare data. Entity resolution and data linkage methods are used to create a cohort of individuals who have tested positive and negative for SARS-CoV-2 in England throughout the COVID-19 pandemic, alongside information on a range of health outcomes, including diagnosed clinical conditions, mortality, and risk factor information.
Results: The dataset contains comprehensive COVID-19 testing data and demographic, socio-economic, and health-related information for 44 million individuals who tested for SARS-CoV-2 between March 2020 and April 2022, representing 15,720,286 individuals who tested positive and 42,351,016 individuals who tested negative.
Discussion: With the application of epidemiological and statistical methods, this dataset allows a range of clinical outcomes to be investigated, including pre-specified health conditions and mortality. Furthermore, understanding potential determinants of health outcomes can be gained, including pre-existing health conditions, acute disease characteristics, SARS-CoV-2 vaccination status, and genomic variants.
Keywords: COVID-19; data linkage; electronic health data; health outcomes; post-acute COVID-19.
. 2025 Mar 12:13:1513508.
doi: 10.3389/fpubh.2025.1513508. eCollection 2025. Development of the ECHOES national dataset: a resource for monitoring post-acute and long-term COVID-19 health outcomes in England
Hester Allen[SUP] 1 2 [/SUP], Katie Hassell[SUP] 1 [/SUP], Christopher Rawlinson[SUP] 1 [/SUP], Owen Pullen[SUP] 1 [/SUP], Colin Campbell[SUP] 1 [/SUP], Annika M Jödicke[SUP] 2 [/SUP], Martí Català[SUP] 2 [/SUP], Albert Prats-Uribe[SUP] 2 [/SUP], Gavin Dabrera[SUP] 1 [/SUP], Daniel Prieto-Alhambra[SUP] 2 3 [/SUP], Ines Campos-Matos[SUP] 1 [/SUP]
Affiliations
- PMID: 40145004
- PMCID: PMC11936881
- DOI: 10.3389/fpubh.2025.1513508
Introduction: Electronic health records can be used to understand the diverse presentation of post-acute and long-term health outcomes following COVID-19 infection. In England, the UK Health Security Agency, in collaboration with the University of Oxford, has created the Evaluation of post-acute COVID-19 Health Outcomes (ECHOES) dataset to monitor how an initial SARS-CoV-2 infection episode is associated with changes in the risk of health outcomes that are recorded in routinely collected health data.
Methods: The ECHOES dataset is a national-level dataset combining national-level surveillance, administrative, and healthcare data. Entity resolution and data linkage methods are used to create a cohort of individuals who have tested positive and negative for SARS-CoV-2 in England throughout the COVID-19 pandemic, alongside information on a range of health outcomes, including diagnosed clinical conditions, mortality, and risk factor information.
Results: The dataset contains comprehensive COVID-19 testing data and demographic, socio-economic, and health-related information for 44 million individuals who tested for SARS-CoV-2 between March 2020 and April 2022, representing 15,720,286 individuals who tested positive and 42,351,016 individuals who tested negative.
Discussion: With the application of epidemiological and statistical methods, this dataset allows a range of clinical outcomes to be investigated, including pre-specified health conditions and mortality. Furthermore, understanding potential determinants of health outcomes can be gained, including pre-existing health conditions, acute disease characteristics, SARS-CoV-2 vaccination status, and genomic variants.
Keywords: COVID-19; data linkage; electronic health data; health outcomes; post-acute COVID-19.